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Links to Pain Forums: Comments: intended for general audience. Please contact the webmaster if you know of any new forums or chats not listed or have difficulty with links or email discussion lists. The following list will be updated periodically: Back Problems from Sympatico Health Talk Forums (Canadian). BrainTalk Communities - Neurology Support Groups online discussions about various Neurology-related topics including Arachnoiditis, Central Pain, Chronic Pain, Heachache, Multiple Sclerosis, Neuralgia, Peripheral Neuropathy, RSD, Spinal Disorders and Thoracic Outlet Syndrome. From Department of Neurology Massachusetts General Hospital, MGH. Comment: highly recommended. Central Pain Syndrome Alliance also has an online EGROUP discussion group (04/23/01) Yahoo Message Board: Diseases & Conditions Comment: 04/99 current threads on spinal surgery, Fibromyalgia, Chronic Fatigue Syndrome, Crohn's Disease, Irritable Bowel Syndrome, AIDS, LUPUS and more. Neurology and Neurosurgery Forum from the Cleveland Clinic Foundation The Open Forum Community The Arthritis Society's Open Forum Community; a collection of Discussion Boards for various types of arthritis or specific issues. e.g. disability or family issues(04/23/01) Sympatico Healthway Disability Forum Comments: Canadian site, forums on HIGHLY RECOMMENDED:Chronic Pain Management, Fibromyalgia (FM) and Myalgic Encephalomyelitis (ME) or Chronic Fatigue Syndrome (CFS), Back Problems, Revenue Canada and more including past archives of old forums, you are welcome to start a new forum. personal website with message boards and chat for the TMJD community(11/20/00) Worldwide Congress On Pain - Forums and Chatrooms "These forums are intended for healthcare professionals as well as their patients and families to discuss and share information about pain, and pain management." Worldwide Healthcare Forums A forum for Healthcare Professionals. Comment: forum on Pain Management for healthcare professionals only. Pain Email Discussion Lists: (Implemented by L-Soft's LISTSERV software) Listes de discussion d'email de la douleur: Comment: joining in an email discussion list, also referred to as internet mailing list, is virtually joining a large subscription list where news consists of posted email messages from submitting subscribers. Each email posted to the list is distributed to all the subscribers in the list. You may choose to participate at any time by replying to a message, starting a new discussion or just listening (lurking) to the many discussions. Most discussion lists prefer an introductory post for new members. The Actiononpain discussion list "The Actiononpain discussion list is an online support group, created & supported by the American Society for Action on Pain where the motto is: Seeking "adequate and ongoing" narcotic pain medication for all Americans who suffer, and fully protecting those doctors who have the courage to treat us." 09/18/00 The Ankylosing Spondylitis Digest From the Ankylosing Spondylistis Site. Arachnoiditis Support Group***COFWA "Circle of Friends With Arachnoiditis" (COFWA). Online support group via email list for people who suffer from arachnoiditis. Comment: high volume of email. Initial free membership required. CANCER-L (WVNET Cancer Discussion List) For people with cancer and their friends, family, and physicians. Comment: high volume of email, unmoderated, archived, no digest available. CentralPain"This is an e-mail discussion group specifically for discussion about stroke pain, Thalamatic or central pain stroke support, information and stroke questions". CFS-L (Chronic Fatigue Discussion, CFIDS/ME): email discussion list forum for people with Chronic Fatigue, family, friends and medical professionals. Provides support and information sharing. Comment: unmoderated, low volume of email. CHRONIC PAIN and ILLNESS LIFE-LINE "for Chronic And Intractable Pain, there are over 650 pages of information, Message Boards, Discussion Lists, Chat Rooms, and a contact table for personalized assistance.." (05/30/01) Co-Cure"The name "Co-Cure" stands for "Co-operate and Communicate for a Cure." The mailing list has been established with the goal of furthering co-operative efforts towards finding the cure for the illness commonly referred to as Chronic Fatigue Syndrome (CFS) and Fibromyalgia (FM)." The Chronic Pain Support Group (CPSG"is here so that you don't have to be alone with your pain. Our goals are to provide a place where you can share information, receive support, and to learn about new treatments" Endometriosis WITSENDO: an email discussion list for patients with Endometriosis, including friends family, researchers and medical professionals. Comment: low volume of email, moderated, archived. FIBROM-L: an email discussion list for patients with Fibromyalgia and their family, friends and medical professionals. Comment: High volume of email. HEADACHE: an email discussion list for patients with headaches, provides a forum for the exchange of information about the various forms of recurring headaches -- Migraine, Cluster, and Vascular. Comment: low volume of email. HIV-AIDS-DIALOGUE: an international email discussion list for patients with HIV or AIDS including others affected. Discussion on coping and accepting change. Comments: low volume of email. unmoderated. IBDlist (Inflammatory Bowel Diseases): an email discussion list for patients with Inflammatory Bowel Diseases (including Crohn's disease, ulcerative colitis, spastic colon, and other related diseases. Family, friends and medical professionals welcome also. Digest format only. IMMUNE"Immune is a mailing list for people (including family, friends, and medical care workers) to discuss various immune-system related ailments such as: Chronic Fatigue Syndrome, Candida, Lupus, Fibromyalgia, Epstein-Barr, multiple allergies, environmental illness, chemical sensitivity, etc. The group is for support and information sharing. MSLIST-L :an email discussion list for patients with Multiple Sclerosis including friends, family and medical professionals. Comment: High volume of daily email. Unmoderated. PAIN-L: is now "on Message Boards and in Chat Rooms. The list is now for low traffic and exclusively for announcements and articles only. Discussion has been moved off the list to the message board. Read the Main Message Board when you subscribe to PAIN-L for schedules, some articles, and announcements of upcoming IRC and Chat Room *chat* events." (04/15/99 Hank Roth)
Post-Polio-Med"Post-Polio-Med is a forum for questions and answers to and from post-polio syndrome researchers, physicians and other post-polio syndrome medical professionals, polio survivors, family, friends, students and others who are interested in post-polio syndrome." RSD Discussions Groups various email discussions groups for individuals with RSD, including children, teens, loved ones and partners. Scoliosis Mailing List"is a mailing list (with over 300 subscribers) for scoliosis. It is for asking and answering questions and discussing topics like treatment options, research results, and personal experience". Comment: site also includes FAQ, recommended books and links to other Scoliosis sites. TN:Trigeminal Neuralgia Mailing List an educational email discussion list (forum) for patients with Trigeminal Neuralgia. Comment: low volume, not archived, digest available. TN-L: an email discussion group devoted to trigeminal neuralgia and facial pain Links to Discussion NewsGroups: Comments: intended for general audience. Warning: not all newsgroups are moderated so please use at your own discretion. The following list will be updated periodically: If this is your first time using a NewsGroup please read A Primer on How to Work With the Usenet Community and Rules for posting to Usenet Links to Pain Chats: Comments: intended for general audience. Neurology Chatrooms from the Department of Neurology at Massachusetts General Hospital with scheduled guest physician speakers. Chat Rooms for Arachnoiditis, Chronic Pain Syndrome, Fibromyalgia, Headache, HIV and Infectious Disease, Multiple Sclerosis, Neuralgia, Parkinsons Disease, Peripheral Neuropathy, RSD (Reflex Sympathetic Dystrophy), Spinal Disorders, Thoracic Outlet Syndrome and more. Comment: highly recommended. Chronic Pain Community Chatpublic chat room for chronic pain patients.09/18/00 HOPA HEADACHE HI-WAYChat room from personal support site for Headache and Migraine patients. 09/18/00 The ICQ Chronic Pain Listpersonal site by Jim Goedhart MedSupport Chronic Fatigue Syndrome Chat Room MedSupport Chronic Pain/Pain Management Chat Room MedSupport Fibromyalgia Chat Room MedSupport Multiple Sclerosis Chat Room MedSupport Spinal Cord Injury Chat Room Mining Company Back and Neck Injury Chat Comment: Please read guidelines and usage notes before using Chats. Mining Company Leaning Tree Chat Room from the Chronic Fatigue syndrome website. Comment: Please read guidelines and usage notes before using Chats. Our Chronic Pain Mission Chat see personal support website Pain Central "is a wonderful place of support for pain sufferers and their families alike. It is a place for sharing and caring." |